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There is no genetic test for hEDS because the cause(s) of hEDS have not been identified

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(ii) CMS designates an alternative quality performance standard for an ACO that does not meet the criteria described in paragraph (a)(2) or (a)(5)(i) of this section as the following: (A) For performance year 2024, the ACO reports quality data on the APP quality measure set established under 414.1367 of this subchapter according to the method of submission established by CMS and achieves a quality performance score equivalent to or higher than the 10th percentile of the performance benchmark on at least one of the four outcome measures in the APP quality measure set

Clinical data shows low incidence rates

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BPS exposure for 120 days decreased IPL and GCL thickness, increased thickness of the RPE and changed expression of opsin genes 41